At age 46 my kidneys failed and I am now doing dialysis. This is the age one of my ggg aunts died of kidney failure her name was Mary Goggs nee Huggett. My gg grandfather Thomas Charles Huggett died in 1890 at age 47 from brights disease (Victorian name for kidney failure. This information was lost to my family or conveniently forgotten when my mother went into kidney failure in her late twenties after bearing two children. She survived on dialysis for 11 years before getting a transplant which has lasted 27 years. My sister shows no symptoms and was told it was ok to have children but one of them was diagnosed with kidney problems at an early age and has had a transplant at 17 years old. The other 3 all show signs of deteriorating kidney function. They have been diagnosed with FJHN. My mother and I were diagnosed with interstitial nephritis but it is likely we all have the same problem. My grandmother lived to be 84 and her mother, who had 7 children, lived into her 80s and they appeared to show no symptoms but must have carried the gene. There is treatment these days for people whose kidneys fail completely or are failing. I was diagnosed in my early twenties and given a drug to slow the deterioration. But there is evidence which shows the earlier the drug is taken before any symptoms show up the better. Some research is being undertaken to identify the gene affected in our family but we have only 7 individuals and if we could find others who are affected that would help. It is considered that someone somwhere else in the world is affected and we would like to hear from them. If anyone connected with the Huggett family knows of any death certificate or living person with the problem please get in touch. Also if you are not affected and may be related to us we would like to hear from you because we are trying to trace as many living relations as possible. My gg grandfather's parents were John Huggett c1798-1880 and Sarah Bishop born 1800. They were married in Birchington, Kent and then lived in Broadstairs where they had 17 children. I see from this website that Stephen Thomas born 1833 went to Australia. Also I think John born 1826 may have gone to Ohio in the US. William Henry became a boatbuilder in Margate. We will be grateful for any information you can provide. Helen
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